Please excuse the upcoming rant, but I'm frustrated, angry, and I need to vent.
As you may know, my son is on the autism spectrum.
We were able to get NDIS "support", who demanded that we get an independent psychiatric evaluation, to get him a proper diagnosis, before they can provide any semblance of support- $3,000 later (out of our own pockets, mind you), we finally get a diagnosis...
The psychiatrist - who was unable to get anywhere with our son in their face-to-face meeting, because he went completely non-verbal, his under a chair, and stimmed to soothe himself for the 90-minute session - initially gave a diagnosis stating that he was not on the autistic spectrum, despite witnessing the behaviours I just described.
The psychiatrist advised that our son was not on the spectrum.
We pushed, and fought, for the psychiatrist to try a different approach.
The psychiatrist eventually relented, sent us, and his daycare, a questionnaire, and we each filled it out, and returned it to the psychiatrist.
Three months after receiving the completed questionnaires, the psychiatrist diagnoses our son as a level 1 on the spectrum - the lowest level.
Now, the NDIS is saying he does not need support, as he is "only at level 1".
For context, in the past 7 days:
- our son threw one of his chairs at my face, which hit me in the eye, because we are asking him to stop jumping on the lounge;
- has been throwing chairs, hitting teachers, and throwing toys at his daycare friends, to the point that the teachers are saying that his peers are afraid of him;
- our son threw himself on the floor, and cried for 4 consecutive hours, screaming, because we had previously praised his good behaviour (he was really well-behaved, so we thought we would tell him how proud we were, and all that did was trigger him to start screaming, and crying);
- when trying to communicate with him, he goes completely non-verbal, refusing to answer questions, or tell us what he needs, to the point where he throws his dinner on the floor, refuses anything else to eat, and then at 9pm, cries that he's hungry, and will only eat fruit;
- he has repeatedly hit, and yelled right in the face of, our two-year old daughter.
We have tried to "bribe" him with treats/toys ("if you're good, you get a treat/toy"), we have tried to shower him with a lot of affection, we have tried to be stern, we have tried to ignore him, we have tried to take things away (eg: certain toys he likes, and put them in a temporary jail)....
Nothing works, and now they are saying they will remove their support, because he's not a level 2, or higher.
I am truly worried that he will get kicked out of daycare, and I am also very concerned at how he will handle school without support.
I don't know what to do.